Parenting can be stressful under the best of circumstances, but moms and dads of children with developmental and mental health challenges often have to deal with strain of a different magnitude. Caring for a child with special needs can become a full-time job — and an overwhelming one at that, if you don’t have adequate support. Without enough help, parents may be headed toward caregiver burnout, which negatively affects everyone.
The consequences of chronic stress related to raising kids who have intense needs are real. Studies show that parents of children with developmental, psychiatric or learning disorders are far more likely than others to experience:
- Anxiety
- Depression
- Insomnia
- Fatigue
- Marital problems
The risks, both emotional and physical, to caregivers of challenging children are important to address, for the children’s sake as well as the parents’. Below, we look at common contributors to caregiver stress and offer some suggestions to help parents stay healthy, balanced and committed to their kids.
Accepting limits to what you can do
Experts agree that part of avoiding or lessening burnout is to challenge the idea that you are the only one who can help and there is no limit to what you need to do.
“These parents feel like they should be able to do it all and the first thing to go is basic self-care,” says Elaine Taylor Klaus, the cofounder of Impact ADHD, which offers training for parents of kids with ADHD and other disorders.
Isolation and exhaustion
When you have a child whose behavior is difficult or whose needs are challenging, feeling cut off from support and empathy can contribute to the stress. Colleagues, neighbors, friends, family — even your spouse can seem to be on another planet. “People cannot understand what you’re going through,” says Patricia Kandel, who has raised two children with serious mental illness.
By the time her family decided their youngest daughter needed to go into a group home, Kandel says, “I was barely functioning.” She, her husband and her 20-year-old daughter were all diagnosed with PTSD “from all the years of living the way we did,” and her marriage had become unrecognizable.
High-stress and time-intensive situations like this one are also where respite care could play a role, says Jill Kagan, director of Access to Respite Care and Help (ARCH). “Respite care is temporary relief for the parent or the primary caregiver of the child so they can take a break from the responsibilities of their continuous caregiving,” she explains.
Many parents aren’t aware of the existence of respite care, she says. “They’re so focused on getting services for their child that they may not even stop to think that there are services out there for them as well.
It takes a village, but you need to ask
Another obstacle to getting help is that you may be afraid to ask. But in truth, people who genuinely want to help may not know how.
Parents need to be fairly direct. “Could you watch the kids on Wednesday so that I can get a haircut?” “If I give you a list, could you pick up the groceries?” These specific requests make it easier for family and friends to pitch in while not feeling out of their depth.
“People are often willing to help you in small ways,” says Dr. Blumenthal. “Like watching your non-challenged child so you can take your special-needs child to therapy.”
Getting out and about
Many parents of kids with psychiatric and developmental challenges find that they lose touch with friends and activities outside the home. “Fifty percent of my sessions are just parent sessions” to help navigate that reality, says Dr. Matthew Rouse, a clinical psychologist at the Child Mind Institute.
Taking care of your emotional and social health is just as important as practicing more routine self-care. Several experts, including Dr. Rouse, emphasized the importance of reclaiming an adult-only social life.
Excerpted from “Why Self-Care Is Essential to Parenting” from Child Mind Institute. Read the full article for additional details, such as how to mitigate feelings of isolation, and how to handle strain in adult relationships, including between spouses.
Source: Child Mind Institute, Why Self-Care Is Essential to Parenting, https://childmind.org/article/fighting-caregiver-burnout-special-needs-kids |© 2021 Child Mind Institute, Inc.
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